We are Livin’ Life, Losin’ Sanity, and Lookin’ Forward — training a special needs princess.  Leah Rose was diagnosed with  Freeman  Sheldon Syndrome aka Whistling Face Syndrome, Arthrogryposis, Glenoid Hypoplasia, and a midline cleft in the soft palate (repaired Sep ‘04).

Please be patient while I finish updating this blog.  I am transferring my journals from the original web site.  Some of the posts contain my notes for me to finish.  Feel free to browse, but please do visit again and hopefully I will have all of the posts finished soon. Start here for the First Entry

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