We are Livin’ Life, Losin’ Sanity, and Lookin’ Forward — training a special needs princess. Leah Rose was diagnosed with Freeman Sheldon Syndrome aka Whistling Face Syndrome, Arthrogryposis, Glenoid Hypoplasia, and a midline cleft in the soft palate (repaired Sep ‘04).
Please be patient while I finish updating this blog. I am transferring my journals from the original web site. Some of the posts contain my notes for me to finish. Feel free to browse, but please do visit again and hopefully I will have all of the posts finished soon. Start here for the First Entry