<?xml version="1.0" encoding="UTF-8"?><rss version="0.92">
<channel>
	<title>Blog for My Leah Rose</title>
	<link>http://www.myleahrose.com/blog</link>
	<description>This is a blog for my daughter, Leah Rose, born on 9/19/03 and diagnosed with Freeman Sheldon Syndrome aka Whistling Face Syndrome, and a midline cleft in the soft palate.</description>
	<lastBuildDate>Wed, 10 Mar 2010 01:42:58 +0000</lastBuildDate>
	<docs>http://backend.userland.com/rss092</docs>
	<language>en</language>
	<!-- generator="WordPress/3.0.1" -->

	<item>
		<title>Welcome!</title>
		<description><![CDATA[   We are Livin’ Life, Losin’ Sanity, and Lookin’ Forward — training a special needs princess.  Leah Rose was diagnosed with  Freeman  Sheldon Syndrome aka Whistling Face Syndrome, Arthrogryposis, Glenoid Hypoplasia, and a midline cleft in the soft palate (repaired Sep ‘04). Please be patient while I finish updating this blog.  I am transferring my journals [...]]]></description>
		<link>http://www.myleahrose.com/blog/?p=332</link>
			</item>
	<item>
		<title>Career Path</title>
		<description><![CDATA[   We spend way too much time in the doctor&#8217;s offices.  Leah Rose can now carry on her own personal conversations with the specialists.  A couple of years ago, we couldn&#8217;t get her nose unglued from the Nintendo DS screen to even look up at the doctors when they were talking to her. Since Leah had [...]]]></description>
		<link>http://www.myleahrose.com/blog/?p=654</link>
			</item>
	<item>
		<title>Bowling Stars</title>
		<description><![CDATA[I&#8217;m always concerned about my daughter&#8217;s hands and arms.  There are sometimes she seems to be so strong&#8230; like when she is pulling on my arms.  But there are other times that they seem so very weak, like trying to pull a shirt over her head. Well, Leah Rose loves to go bowling.  This may [...]]]></description>
		<link>http://www.myleahrose.com/blog/?p=646</link>
			</item>
	<item>
		<title>Wild West Dance</title>
		<description><![CDATA[We are celebrating Exceptional Children&#8217;s Week this week and I guess it was appropriate that the Little League had tryouts last Saturday for the Challenger Division.  I don&#8217;t know if they timed it that way or not, but it was a good kick-off for us.  There was a luncheon/reception for the teachers on Monday.  I [...]]]></description>
		<link>http://www.myleahrose.com/blog/?p=640</link>
			</item>
	<item>
		<title>New Blog Venture</title>
		<description><![CDATA[I am considering starting a new blog, an adventure for Leah Rose and I. Leah is such a girlie-girl and she loves all things pink.  She can chatter on for hours about the color pink, and all the things she loves that are pink.  She has pink clothes, pink blankets, a pink bed, pink chairs [...]]]></description>
		<link>http://www.myleahrose.com/blog/?p=635</link>
			</item>
	<item>
		<title>No, I am NOT Jealous&#8230; and</title>
		<description><![CDATA[  &#8230; I don&#8217;t smell like a rotten egg. This has been a recurring game that Leah Rose and I have been playing for a while.  I know Leah loves me, she tells me so all the time, and I&#8217;m always getting sweet hugs.  But, when we get around Grandmother or Big Brother, I&#8217;m chopped liver.  When [...]]]></description>
		<link>http://www.myleahrose.com/blog/?p=630</link>
			</item>
	<item>
		<title>Magic Marker Monday</title>
		<description><![CDATA[  While cleaning up my daughter&#8217;s drawings the other day (this is usually how I find the really good stuff), I came cross this drawing she did in crayon.  I believe this may be Gary from SpongeBob. Click here to visit Magic Marker Monday on 5 Minutes for Special Needs. Tweet This Post]]></description>
		<link>http://www.myleahrose.com/blog/?p=625</link>
			</item>
	<item>
		<title>Little League Tryouts</title>
		<description><![CDATA[Lately, I have been considering getting Leah Rose started in some type of sports or recreational activity.  I did check into the Georgia Special Olympics online, but from what I&#8217;ve been able to figure out, she may not qualify since she is not developmentally delayed.  She wanted to play soccer, and I think that would [...]]]></description>
		<link>http://www.myleahrose.com/blog/?p=622</link>
			</item>
	<item>
		<title>Special Exposure Wednesday</title>
		<description><![CDATA[Self Portrait I let Leah Rose use my camera one day and this is one of the pictures she took of herself.  I added the picture frame in Paint Shop Pro. Click here to view other Special Exposure Wednesday participants at 5 Minutes for Special Needs. Current Mood: Happy Tweet This Post]]></description>
		<link>http://www.myleahrose.com/blog/?p=614</link>
			</item>
	<item>
		<title>Wordless &amp; Special Exposure Wednesday</title>
		<description><![CDATA[  Click here to view other Wordless Wednesday participants at 5 Minutes for Mom. Click here to view other Special Exposure Wednesday participants at 5 Minutes for Special Needs. Cick here to view my Georgia Angel Wordless Wednesday post, hosted by Wordless Wednesday HQ.  Current Mood: Happy Tweet This Post]]></description>
		<link>http://www.myleahrose.com/blog/?p=606</link>
			</item>
</channel>
</rss>
